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There are a number of distinct subtypes of EDS, some dangerous. Extremely loose joints, fragile or stretchy skin, and a family history of Ehlers-Danlos syndrome are often enough to make a diagnosis. Genetic tests on a sample of your blood can confirm the diagnosis in rarer forms of Ehlers-Danlos syndrome and help rule out other problems. Article updated August 1, 2019. Because Ehlers-Danlos syndrome (EDS) is still not as well-known as it should be, it often gets described in basic terms so others can more easily understand it: It’s a condition that causes dysfunction in the connective tissue, resulting in joint hypermobility, fragile tissue and hyperflexible skin. Ehlers–Danlos syndromes are a group of rare genetic connective-tissue disorders.

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Disclaimer: I have not technically been diagnosed with EDS, but I have ME/CFS and CCI (officially diagnosed) and my CFS doctor at Stanford suspects I have EDS. My CCI pain is so bad I am bed bound most of the time and I am hoping fusion surgery may help improve my quality of life and allow me to be more active. RED IS BAD™ to polska marka odzieży patriotycznej dla ludzi ceniących wolność i dumnych z polskiej historii. Stawiamy na najwyższej jakości ubrania patriotyczne, wyprodukowane w Polsce, cechujące się trwałością i komfortem noszenia.

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Musculoskeletal pain can start early and be chronic. Long-term effects of EDS can include: chronic joint pain; early onset arthritis; failure of surgical wounds to heal properly; increased skin infections due to improper healing; premature rupture of membranes during pregnancy, and; rupturing of the eyeball.

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Page 1 of 212» · BlogNewsroom Contact Sep 1, 2019 EDS is a complex group of inherited disorders that affect and weaken connective tissues such as tendons and ligaments (1).

The bad news is that this one is the most daunting and deadly.
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EDS Nytt Nr 51 2018 by ehlers-danlos - issuu

Like other kids with invisible illnesses, disabilities or sensory sensitivities, you might have been picky about the clothing you wear, reaching for only the softest, most comfortable items to avoid pain and discomfort. Not only is EDS skin fragile and prone to injury, but it also may be very soft, giving some the appearance of being younger than they are. “Soft and fair skin. I’m 38 and nobody ever believes me when I tell them my age.” Ehlers-Danlos Syndrome, or EDS, is a group of 13 heritable (i.e., genetic) disorders that affect the body’s connective tissues. These tissues—found mostly in the skin, joints, and blood vessel walls—act like a glue to help provide strength and elasticity to the body’s structures, including the digestive system and essential organs.